http://www.nydailynews.com/ny_local/2011/02/15/2011-02-15_bravest_hearts_cry_for_lil_liam.html
Sunday, February 20, 2011
Wednesday, February 16, 2011
Celebrating Prince Liam the Brave
Dear Friends,
On Monday, January 24th, the world lost Liam Witt - a gentle, inquisitive child who loved life and lived it to its fullest. . .a brave, sweet little boy who endured so much without complaint and inspired his parents each day with his courage and love. The son of Cookies for Kids' Cancer founders Gretchen and Larry Witt, Liam will forever be the inspiration for their mission to fund new, less toxic treatments for pediatric cancer.
On Valentine's Day at St. Francis of Assisi Catholic Church in New York City, I joined hundreds of friends and family to celebrate the life of Liam. Each day since Liam's memorial service, nearly 50 families in this country received the very same news the Witts received four years ago: Your child has cancer - the disease that kills more children in this country than any other. And tomorrow, about 50 more will get that same news, and in an instant those families will learn what is impossible to accept - cancer can impact any child. It happens every day.
So, how can we help these families? How can we improve their odds? How can we save more kids?
Surrounded by those who knew Liam best, the answer seemed quite clear to me.
Together, we can honor Liam best by continuing the fight against pediatric cancer.
You don't have to know lion-hearted Gretchen and Larry Witt to be inspired by their example. After learning that Liam had a 30 percent chance of survival, they focused every spare secon they had on increasing support for and funding of new, less toxic therapies in an unbelievable effort to save Liam's life and the lives of so many other innocent children.
At the memorial service, I made a resolution in Liam's name. I vowed to honor this amazing child and his valiant family by taking specific action to advance pediatric cancer research. Today, I ask that you join me.
Liam would have celebrated his 7th birthday this May. It's my hope that 700 bake sales will be held across the country in May to honor my friend and hero. As further motivation and a symbol of its love for Liam, the Glad Products Company is committing $225,000 to match all money raised by Cookies for Kids' Cancer bake sales in the month of May. I can't think of a better way to show support not only to Liam's family but to all families in the fight against pediatric cancer. than to get involved.
I called my resolution the "Prince Liam Pledge." Today, I ask you to join me by vowing, in Liam's name, that the 50 kids who get this diagnosis today will have a better outcome than he did. Every child deserves it. And there is arguably no better way to honor the bravest person most of us have ever known.
With sincerest thanks,
On Monday, January 24th, the world lost Liam Witt - a gentle, inquisitive child who loved life and lived it to its fullest. . .a brave, sweet little boy who endured so much without complaint and inspired his parents each day with his courage and love. The son of Cookies for Kids' Cancer founders Gretchen and Larry Witt, Liam will forever be the inspiration for their mission to fund new, less toxic treatments for pediatric cancer.
On Valentine's Day at St. Francis of Assisi Catholic Church in New York City, I joined hundreds of friends and family to celebrate the life of Liam. Each day since Liam's memorial service, nearly 50 families in this country received the very same news the Witts received four years ago: Your child has cancer - the disease that kills more children in this country than any other. And tomorrow, about 50 more will get that same news, and in an instant those families will learn what is impossible to accept - cancer can impact any child. It happens every day.
So, how can we help these families? How can we improve their odds? How can we save more kids?
Surrounded by those who knew Liam best, the answer seemed quite clear to me.
Together, we can honor Liam best by continuing the fight against pediatric cancer.
You don't have to know lion-hearted Gretchen and Larry Witt to be inspired by their example. After learning that Liam had a 30 percent chance of survival, they focused every spare secon they had on increasing support for and funding of new, less toxic therapies in an unbelievable effort to save Liam's life and the lives of so many other innocent children.
At the memorial service, I made a resolution in Liam's name. I vowed to honor this amazing child and his valiant family by taking specific action to advance pediatric cancer research. Today, I ask that you join me.
Liam would have celebrated his 7th birthday this May. It's my hope that 700 bake sales will be held across the country in May to honor my friend and hero. As further motivation and a symbol of its love for Liam, the Glad Products Company is committing $225,000 to match all money raised by Cookies for Kids' Cancer bake sales in the month of May. I can't think of a better way to show support not only to Liam's family but to all families in the fight against pediatric cancer. than to get involved.
I called my resolution the "Prince Liam Pledge." Today, I ask you to join me by vowing, in Liam's name, that the 50 kids who get this diagnosis today will have a better outcome than he did. Every child deserves it. And there is arguably no better way to honor the bravest person most of us have ever known.
With sincerest thanks,
Bob Woodruff
ABC News Anchor
ABC News Anchor
Monday, February 7, 2011
Prince Liam’s Memorial Service
Prince Liam’s Memorial Service
Monday, February 14th, 2011Memorial Service:
2:30 pm - 4:00 pm
St. Francis of Assisi Catholic Church
135 West 31st Street
(between 6th & 7th Avenues)
Note: We suggest arriving at least 15 minutes early.
Reception:
Directly after the service
Studio 450
450 West 31st Street
(between 9th & 10th Avenues)
12th Floor
Note: It is approximately a 10 minute walk from the church.
Liam’s family is requesting that everyone wear something orange, their Prince’s favorite color. Additionally, Liam was particularly passionate about ties and felt every day was a good day to wear one.
Please note that anyone bringing cookies should arrange for delivery to Studio 450 before going to the church. Please do not bring any cookies to the church.
Thursday, January 27, 2011
Good-night, Sweet Prince.
Now cracks a noble heart. Good-night, sweet prince;
And flights of angels sing thee to thy rest.
--Hamlet,V,ii
It is with shattered hearts that we share the news of the end of Liam’s brave and epic journey. Our dearest Prince could simply fight no more as his enemy had grown in size and strength. He fought fearlessly and relentlessly for 4 years. On Monday January 24th at around 4:00 in the afternoon, Liam passed peacefully in our arms. I have sat here for nearly an hour trying to share with you the profound sense of loss we feel but I cannot find the right words. Liam was the drum by which our family’s heart beat and today the drum is painfully silent. Our heart is broken and with it the ability to rationalize the rush of feelings that surround us.
Scan results from just a week ago were not as hoped but we never expected that just 6 days later would be the end of our physical time together. Liam touched people’s lives in such profound ways that we know he will live on in the hearts of many. A wonderful Memorial service and Celebration of Liam is being planned for Monday, February 14th at 2:30pm at St. Francis of Assisi Catholic Church, 135 W 31st Street, New York City. The most perfect day to pay tribute to the brave prince and to celebrate what Liam gave so freely…Love. If you are planning to attend Liam’s services, please RSVP to iloveprinceliam@gmail.com
In lieu of flowers, we request you honor Liam’s love and life by making a donation to the organization he inspired us to create, Cookies for Kids’ Cancer, through a special online giving page we have set up in his honor - http://cookiesforkidscancer.kintera.org/iloveprinceliam.
Wednesday, January 12, 2011
No news is NOT good news...
Much has transpired since we last updated everyone who follows our journey. Many of you get your updates on Liam via Gretchen's Facebook page, which often provides real time information, but others I know still look to this blog as their source of all things Liam and why I am posting here today. The last few months have been the hardest part of this journey so far. Each time we take a step forward we lose any ground gained and then some just a few weeks later. Liam's cancer has been relentless and none of the therapies he has had over the last few months have held him for more than a few weeks. Since his surgery last summer we have been in the throws of this battle nearly full time. Liam has endured numerous rounds of toxic chemo, damaging radiation, and painful antibodies in just the past couple of months. Each has beaten his cancer back but only for a few weeks at which time scans show it spreading to a new spot or growing back where it was just removed or killed. Up until a few weeks ago we felt we were possibly making headway as scans showed some disease but nothing significant and the decision was made to use antibodies to help his body fight the remaining residual disease. Unfortunately after 2 rounds of antibodies a random x-ray showed a suspicious spot on his right lung. The CT scan that followed showed what appears to be disease in his right lung as well as on his right kidney... again.
This news came just 48 hours before Christmas. And with it the question of did we want to continue to fight. This was a question that required no time to discuss or to think through. The answer was we will fight..start therapy next week. Liam would never quit and we will not quit while there remains hope in our hearts and a smile on his face. His love, passion, joy, touch, insight, and warmth are worth every bit of hope and fight there is to muster and not just from us but all of you. So the holiday we hoped would be filled with joy and renewed hope instead left us searching for the strength to make it through and appear as if all was right in our world for Liam and Ella's sake. The needed break in the country was then cut short because we needed to be back in NY to start chemo just a day after the magical morning of Christmas.
Liam finished the round of high dose chemo nearly 2 weeks ago and has been neutrapenic (no immune system) for nearly 10 days now. The chemo pretty much wiped him out and he has barely eaten, played, or been remotely himself, until last night when he seemed to perk up a bit. As if the neutrapenia and fear of being admitted were not enough, last Thursday we found blood in Liam's urine and it has been persistent since. The cause is unknown and could be due to a virus in his bladder called BK virus, which is spread through transfusions and typically only effects those with compromised immune systems. Liam has had countless transfusions so we all hope that this is the cause since it can be treated with a full month of antibiotics. The test takes 6 days and we should know in just a few days if this is the cause. The other possible causes could be the chemo he received 2 weeks ago or the right kidney due to the tumor that is attached to it. If the tumor and kidney the hope is that it is due to the chemo causing the tumor damage. Liam had an MRI yesterday to get a better picture of his kidney and we hope to hear about the results today or tomorrow.
So as you can see we have been through a bit of hell the last few months and are doing all we can to keep pushing ahead and to keep Liam engaged and fighting. Spending nearly most of each day and week at the hospital has taken its toll on Liam, Gretchen, and our family as a whole. Liam needs your hope and prayers more than ever before. Gretchen and I continue to dig deep to find hope, strength, and courage. We will fight with everything we have as we have done from day one. Liam continues to accept whatever comes at him each and every day like the brave prince he is. His days are filled with very little fun and yet he takes it all in stride and does as he needs to with very little fuss. I hear more complaining from adults about the weather, their jobs, their co-workers, family members, and acquaintances in the course of a week than I have heard from Liam in 4 full years. His almost daily display of bravery, strength, and perseverance is really unbelievable when you think about the fact that he is just a 6 year old little boy. He continues to inspire us and to shape the way we view the world and the people around us.
I also want to take a second to thank those who support our efforts to help bring needed change to the world of pediatric cancer by supporting our Cookies for Kids' Cancer Foundation. A special thanks to The Glad Company for taking a public stand against pediatric cancer. No other national brand has created awareness for pediatric cancer in such a meaningful way. Thank you to the thousands of people who held and supported Cookies for Kids'Cancer Bake Sales last year. Cookies will announce grants of half a million dollars to 5 of the top pediatric cancer centers in the country in the coming weeks and it would not be possible without the efforts of so many. Lastly a special thank you to our dear friend Emily for all you do to keep Cookies growing.
Thank You.
Posted by LWitt
This news came just 48 hours before Christmas. And with it the question of did we want to continue to fight. This was a question that required no time to discuss or to think through. The answer was we will fight..start therapy next week. Liam would never quit and we will not quit while there remains hope in our hearts and a smile on his face. His love, passion, joy, touch, insight, and warmth are worth every bit of hope and fight there is to muster and not just from us but all of you. So the holiday we hoped would be filled with joy and renewed hope instead left us searching for the strength to make it through and appear as if all was right in our world for Liam and Ella's sake. The needed break in the country was then cut short because we needed to be back in NY to start chemo just a day after the magical morning of Christmas.
Liam finished the round of high dose chemo nearly 2 weeks ago and has been neutrapenic (no immune system) for nearly 10 days now. The chemo pretty much wiped him out and he has barely eaten, played, or been remotely himself, until last night when he seemed to perk up a bit. As if the neutrapenia and fear of being admitted were not enough, last Thursday we found blood in Liam's urine and it has been persistent since. The cause is unknown and could be due to a virus in his bladder called BK virus, which is spread through transfusions and typically only effects those with compromised immune systems. Liam has had countless transfusions so we all hope that this is the cause since it can be treated with a full month of antibiotics. The test takes 6 days and we should know in just a few days if this is the cause. The other possible causes could be the chemo he received 2 weeks ago or the right kidney due to the tumor that is attached to it. If the tumor and kidney the hope is that it is due to the chemo causing the tumor damage. Liam had an MRI yesterday to get a better picture of his kidney and we hope to hear about the results today or tomorrow.
So as you can see we have been through a bit of hell the last few months and are doing all we can to keep pushing ahead and to keep Liam engaged and fighting. Spending nearly most of each day and week at the hospital has taken its toll on Liam, Gretchen, and our family as a whole. Liam needs your hope and prayers more than ever before. Gretchen and I continue to dig deep to find hope, strength, and courage. We will fight with everything we have as we have done from day one. Liam continues to accept whatever comes at him each and every day like the brave prince he is. His days are filled with very little fun and yet he takes it all in stride and does as he needs to with very little fuss. I hear more complaining from adults about the weather, their jobs, their co-workers, family members, and acquaintances in the course of a week than I have heard from Liam in 4 full years. His almost daily display of bravery, strength, and perseverance is really unbelievable when you think about the fact that he is just a 6 year old little boy. He continues to inspire us and to shape the way we view the world and the people around us.
I also want to take a second to thank those who support our efforts to help bring needed change to the world of pediatric cancer by supporting our Cookies for Kids' Cancer Foundation. A special thanks to The Glad Company for taking a public stand against pediatric cancer. No other national brand has created awareness for pediatric cancer in such a meaningful way. Thank you to the thousands of people who held and supported Cookies for Kids'Cancer Bake Sales last year. Cookies will announce grants of half a million dollars to 5 of the top pediatric cancer centers in the country in the coming weeks and it would not be possible without the efforts of so many. Lastly a special thank you to our dear friend Emily for all you do to keep Cookies growing.
Thank You.
Posted by LWitt
Saturday, September 18, 2010
PLEASE VOTE FOR COOKIES
Dear Friends,
You might not be aware that Cookies for Kids’ Cancer, the 501(c)3 nonprofit Gretchen and I started after Liam was diagnosed with Cancer, has been selected by the Jimmie Johnson Foundation (Nascar Driver - Lowe’s Team) as a winner in its Samsung Helmet of Hope program. The 13 chosen charities are now in a popularity contest to win and additional $20,000 grant. Plus the winning charity will receive a great deal of publicity and awareness courtesy of the most successful driver in Nascar! Help Cookies win like Jimmie Johnson wins!
VOTE NOW CLICK HERE
(bookmark link so you can return to it easily)
How can you help?
1. Vote for Cookies for Kids’ Cancer via the above link every day between now and September 29th. You can vote from every computer you can find and depending on your internet connection, from different browsers on the same computer!
2. Get everyone you know to vote as well…kids, friends, co-workers, etc.
3. Kids in college? Ask them to champion this effort on campus!
4. Have a Facebook Page? Share it! Like It!
5. Kids have a Facebook Page?…ask them to share it with all of their friends as well.
6. Company website?
7. Newsletter to customers?
8. Business meeting with a close customer or vendor? Ask them and their employees to get involved.
9. Kids in college? Get them to champion this effort on campus!
10. Help make someone aware of how easy it is to help bring awareness and dollars to pediatric cancer research…just the click of a mouse. Sadly September is Pediatric Cancer Awareness Month and I bet many of you had no idea.
Cookies has been in a heated battle for first place with another organization and why I have decided to go to my personal well and to reach out to all of you to help us pull ahead. After you vote the site will tell you what percent of the overall votes each charity in the running has earned. We need as much support as we can get to pull ahead and stay ahead. Voting once is nice but it will take a consistent daily vote from everyone to ensure Cookies comes out ahead. I know many of you are big supporters of our brave son Liam, our family, plus the organization we founded to fight back. This really is an easy way to help make a difference and it will take you just one to two minutes each day! Consider setting a reminder in your calendar or blackberry so you remember to vote each and every day!
VOTE NOW CLICK HERE!!
The winning charity will be announced live at the October 1st Nascar Cup Race at the Kansas Speedway! The exposure at the event and the media attention the winner will receive would provide Cookies with an immeasurable boost as we head into our biggest and busiest season. We appreciate any help you can bring to our effort. Cookies will grant more than half a million dollars before the end of the year to support research at the top pediatric cancer centers across the country. Please help us help Liam and other kids like him win. Vote for Cookies for Kids’ Cancer as the overall winner in the Jimmie Johnson Foundations Helmet of Hope Campaign.
You might not be aware that Cookies for Kids’ Cancer, the 501(c)3 nonprofit Gretchen and I started after Liam was diagnosed with Cancer, has been selected by the Jimmie Johnson Foundation (Nascar Driver - Lowe’s Team) as a winner in its Samsung Helmet of Hope program. The 13 chosen charities are now in a popularity contest to win and additional $20,000 grant. Plus the winning charity will receive a great deal of publicity and awareness courtesy of the most successful driver in Nascar! Help Cookies win like Jimmie Johnson wins!
VOTE NOW CLICK HERE
(bookmark link so you can return to it easily)
How can you help?
1. Vote for Cookies for Kids’ Cancer via the above link every day between now and September 29th. You can vote from every computer you can find and depending on your internet connection, from different browsers on the same computer!
2. Get everyone you know to vote as well…kids, friends, co-workers, etc.
3. Kids in college? Ask them to champion this effort on campus!
4. Have a Facebook Page? Share it! Like It!
5. Kids have a Facebook Page?…ask them to share it with all of their friends as well.
6. Company website?
7. Newsletter to customers?
8. Business meeting with a close customer or vendor? Ask them and their employees to get involved.
9. Kids in college? Get them to champion this effort on campus!
10. Help make someone aware of how easy it is to help bring awareness and dollars to pediatric cancer research…just the click of a mouse. Sadly September is Pediatric Cancer Awareness Month and I bet many of you had no idea.
Cookies has been in a heated battle for first place with another organization and why I have decided to go to my personal well and to reach out to all of you to help us pull ahead. After you vote the site will tell you what percent of the overall votes each charity in the running has earned. We need as much support as we can get to pull ahead and stay ahead. Voting once is nice but it will take a consistent daily vote from everyone to ensure Cookies comes out ahead. I know many of you are big supporters of our brave son Liam, our family, plus the organization we founded to fight back. This really is an easy way to help make a difference and it will take you just one to two minutes each day! Consider setting a reminder in your calendar or blackberry so you remember to vote each and every day!
VOTE NOW CLICK HERE!!
The winning charity will be announced live at the October 1st Nascar Cup Race at the Kansas Speedway! The exposure at the event and the media attention the winner will receive would provide Cookies with an immeasurable boost as we head into our biggest and busiest season. We appreciate any help you can bring to our effort. Cookies will grant more than half a million dollars before the end of the year to support research at the top pediatric cancer centers across the country. Please help us help Liam and other kids like him win. Vote for Cookies for Kids’ Cancer as the overall winner in the Jimmie Johnson Foundations Helmet of Hope Campaign.
Thursday, August 26, 2010
And the clouds give back every time they cry..
Last week was the worst week we have experienced in a very long time and quite possibly the worst since this journey began nearly four years ago. Liam has not been right since surgery 5 weeks ago to remove the small tumor in his chest. His recovery was too slow and he was not the Liam we knew the weeks prior to surgery when he was jumping in the pool, swimming, and enjoying summer like a kid is supposed to be able to do. The reason for his struggles became apparent last Friday when his recent scan results showed that his cancer was spreading. It has once again appeared around his right kidney and it could be that his kidney is now involved. The site in his chest that was just surgically cleared 5 weeks ago has new disease that looks as if nothing was even removed.
This is the most aggressive his disease has been and it has put Liam in a very dangerous place. He is weaker than he has been in a very long time and suffering from the effects of radiation and now the chemotherapy he is receiving this week in hopes of stopping the spread of this relentless, insidious, cancer. He is barely eating because he feels to sick to keep anything down, only making him weaker. We have never felt like we were losing this battle until now. Each relapse has been simply a bump in the road and together we have been able to meet it head on and get back on track to the amazement of many. This time is different. This relapse is much bigger and we have lost precious ground this time. We are scared for him in a way unlike any time in the past.
The conversation with Liam’s doctor was just as different. Each time in the past a game plan was presented and there was never a question of fighting on. Never a question of what do you as his parents want to do…it was obvious. This time we were both summoned to come in and discuss the situation even though everyone at MSKCC knows I have the scan result and game plan conversation alone and Gretchen is allowed to remain focused on Liam and the prize and is not to be brought into such discussions. This time the conversation started off with “this is serious” and then basically we were being asked if we wanted to wave the fucking white flag and surrender our son to this worthless enemy. No matter the words chosen by our doctor this was the question. Surrender to an enemy who’s too much of a coward to fight an adult like myself but rather it looks to steal our small innocent son.
Gretchen and I had already discussed this possibility and unless there was a case presented clearly stating we had no chance of stopping this disease we were going to keep going. We know Liam wants to live. He is one of the most alive people we have ever met and there is no question in our mind he would not want to give up if he had the ability to make such a decision on his own. It is a decision that a parent should never have to make because while we know fighting for his life is the right thing to do but it is tempered with the fact that we know the therapies we must use are taking their own toll on him and we also know it is very unlikely a cure. We all agreed to do a very strong regimen of 5 different chemo agents. It has to work. It must stop the progression we are seeing. We will then likely need to repeat the regimen and it will need to shrink the present disease to a point where it can be surgically removed again. We never stop hoping for a miracle and at the very least looking to buy him more time to experience the sun, moon, stars, sand, his best friend Tabor, and sweet adoring sister Ella. Liam needs your love, strength, support, acts of kindness, inspiration, and anything and everything you can spare for him now more than ever before. He is miserable and the coming weeks and months will only be more of the same for him and all of us involved. I cannot remember the last time I have seen him so beaten down. We need him to remain engaged and fighting. We all need more time to love and adore our Prince Liam. More time for Scientists to unlock the weak link in this cancer.
Last weekend Liam was supposed to travel to South Carolina to meet his friend Jack Johnson, a singer songwriter whose music Liam simply adores. He was going to be Jack’s guest backstage and to see Jack in concert. Unfortunately Friday’s news and the way Liam was feeling forced the trip and meeting to be cancelled. I so wanted him to be able to make this trip and for him to meet Jack whose music has put him to sleep and calmed his mind and heart so many times. I wanted him to leave an impression upon the man’s whose music touches his little soul, knowing Liam would surely touch his soul, as he has done to everyone who has had the pleasure of spending time with him. Instead Jack sang Liam’s favorite song to him and a friend of ours videotaped it and brought it to NY on Monday to share with Liam (thank you Emily we love you and thank you Jack!). The words to the song are below and the most amazing thing is the words are so fitting. It’s as if Jack knew Liam when he wrote this sweet song. It reflects Liam’s outlook on life, love of the sun, weather, the grass, and how his world really is a puzzle he enjoys taking apart and putting back together. Liam like the water gives us all a gift. If we could just give back to him like the clouds give back then the sun would come back out and he could follow it forever.
Talk of the Town by Jack Johnson
I want to be where the talk of the town
Is about last night when the sun went down
And the trees all dance
And the warm wind blows in that same old sound
And the water below gives a gift to the sky
And the clouds give back every time they cry
And make the grass grow green beneath my toes
And if the sun comes out
I'll paint a picture all about
The colors I've been dreaming of
The hours just don't seem enough
To put it all together
Maybe it's as strange as it seems
And the trouble I find is that the trouble finds me
It's a part of my mind it begins with a dream
And a feeling I get when I look and I see
That this world is a puzzle, I'll find all of the pieces
And put it all together, and then I'll rearrange it
I'll follow it forever
Always be as strange as it seems
Nobody ever told me not to try
And the water below gives a gift to the sky
And the clouds give back every time they cry
And make the grass grow green beneath my toes
And if the sun comes out
I'm going to paint a picture all about
The colors I've been dreaming of
The hours just don't seem enough
To put it all together
This is the most aggressive his disease has been and it has put Liam in a very dangerous place. He is weaker than he has been in a very long time and suffering from the effects of radiation and now the chemotherapy he is receiving this week in hopes of stopping the spread of this relentless, insidious, cancer. He is barely eating because he feels to sick to keep anything down, only making him weaker. We have never felt like we were losing this battle until now. Each relapse has been simply a bump in the road and together we have been able to meet it head on and get back on track to the amazement of many. This time is different. This relapse is much bigger and we have lost precious ground this time. We are scared for him in a way unlike any time in the past.
The conversation with Liam’s doctor was just as different. Each time in the past a game plan was presented and there was never a question of fighting on. Never a question of what do you as his parents want to do…it was obvious. This time we were both summoned to come in and discuss the situation even though everyone at MSKCC knows I have the scan result and game plan conversation alone and Gretchen is allowed to remain focused on Liam and the prize and is not to be brought into such discussions. This time the conversation started off with “this is serious” and then basically we were being asked if we wanted to wave the fucking white flag and surrender our son to this worthless enemy. No matter the words chosen by our doctor this was the question. Surrender to an enemy who’s too much of a coward to fight an adult like myself but rather it looks to steal our small innocent son.
Gretchen and I had already discussed this possibility and unless there was a case presented clearly stating we had no chance of stopping this disease we were going to keep going. We know Liam wants to live. He is one of the most alive people we have ever met and there is no question in our mind he would not want to give up if he had the ability to make such a decision on his own. It is a decision that a parent should never have to make because while we know fighting for his life is the right thing to do but it is tempered with the fact that we know the therapies we must use are taking their own toll on him and we also know it is very unlikely a cure. We all agreed to do a very strong regimen of 5 different chemo agents. It has to work. It must stop the progression we are seeing. We will then likely need to repeat the regimen and it will need to shrink the present disease to a point where it can be surgically removed again. We never stop hoping for a miracle and at the very least looking to buy him more time to experience the sun, moon, stars, sand, his best friend Tabor, and sweet adoring sister Ella. Liam needs your love, strength, support, acts of kindness, inspiration, and anything and everything you can spare for him now more than ever before. He is miserable and the coming weeks and months will only be more of the same for him and all of us involved. I cannot remember the last time I have seen him so beaten down. We need him to remain engaged and fighting. We all need more time to love and adore our Prince Liam. More time for Scientists to unlock the weak link in this cancer.
Last weekend Liam was supposed to travel to South Carolina to meet his friend Jack Johnson, a singer songwriter whose music Liam simply adores. He was going to be Jack’s guest backstage and to see Jack in concert. Unfortunately Friday’s news and the way Liam was feeling forced the trip and meeting to be cancelled. I so wanted him to be able to make this trip and for him to meet Jack whose music has put him to sleep and calmed his mind and heart so many times. I wanted him to leave an impression upon the man’s whose music touches his little soul, knowing Liam would surely touch his soul, as he has done to everyone who has had the pleasure of spending time with him. Instead Jack sang Liam’s favorite song to him and a friend of ours videotaped it and brought it to NY on Monday to share with Liam (thank you Emily we love you and thank you Jack!). The words to the song are below and the most amazing thing is the words are so fitting. It’s as if Jack knew Liam when he wrote this sweet song. It reflects Liam’s outlook on life, love of the sun, weather, the grass, and how his world really is a puzzle he enjoys taking apart and putting back together. Liam like the water gives us all a gift. If we could just give back to him like the clouds give back then the sun would come back out and he could follow it forever.
Talk of the Town by Jack Johnson
I want to be where the talk of the town
Is about last night when the sun went down
And the trees all dance
And the warm wind blows in that same old sound
And the water below gives a gift to the sky
And the clouds give back every time they cry
And make the grass grow green beneath my toes
And if the sun comes out
I'll paint a picture all about
The colors I've been dreaming of
The hours just don't seem enough
To put it all together
Maybe it's as strange as it seems
And the trouble I find is that the trouble finds me
It's a part of my mind it begins with a dream
And a feeling I get when I look and I see
That this world is a puzzle, I'll find all of the pieces
And put it all together, and then I'll rearrange it
I'll follow it forever
Always be as strange as it seems
Nobody ever told me not to try
And the water below gives a gift to the sky
And the clouds give back every time they cry
And make the grass grow green beneath my toes
And if the sun comes out
I'm going to paint a picture all about
The colors I've been dreaming of
The hours just don't seem enough
To put it all together
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