Tuesday, March 6, 2007
Post Your Well Wishes and Messages
Please post your words of love, encouragement, and any other information you feel will be of benefit to the family. Simply click the POST A COMMENT button and begin typing your message. When finished click PUBLISH YOUR COMMENT. Larry and Gretchen will be reading this page several times a week. Thank you.
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469 comments:
«Oldest ‹Older 201 – 400 of 469 Newer› Newest»Hey Liam! I am glad you had a good weekend and have been able to do some fun things with your family and friends! I just wanted to stop by and say hello and let you know I'll be in NYC in a few weeks and hopefully donating some platelets or blood in your name!
"He reached down from on high and took hold of me; He drew me out of deep waters."
Psalm 18:16
"In the world you will have tribulation; but be of good cheer, I have overcome the world." John 16:33
Just a note from a mom of three little ones in California ( I have a 5 year old girl, a boy who will be 3 in July that seems quite like Liam in many ways, and a boy who is almost one)...read about Liam in Cookie, and can't help but read the blog as often as I can. I guess because it gives me strength and inspiration, and those daily reminders of how precious every day really is. Your family is in our prayers. I believe in my heart Liam will soon be a strapping young man grounded in the knowledge of where he's been and how many lives he's touched. All the best.
Weeping may last for the night, but a shout of joy comes in the morning.” (Psalm 30:5)
Praying for endurance for this season of your lives and that the shout of joy will come quickly!
Lean on God's strength and He will help you through.
Just to let you know that the Parkes family in California thinks about you and continues to pray for Liam.
Ariane, John, Owen and Lindsay
Gretchen,
It takes enormous courage to go through this, and I can tell from your blog that you are finding strength you probably didn't know you had. Please know that I am sending healing prayers your way!
Kathy Childers, Cooking Pleasures
My fingers are also crossed that Liamh will avoid neutropenia. Don't know how you are doing this, but keep hanging in there best as you can. Many prayers and good wishes to your family.
"Pray without ceasing.” (1 Thessalonians 5:17)
This is what we are planning to do for Liam and your family. We are praying for his complete healing, for you to be able to make it through each day leaning on God's strength. We are praying for the tests he will be going through on June 13, 14,15. We are praying that his nausea will go away, and his appetite will come back. We are praying that Liam will be strong through all of this, and that he will be a shining light in this world, and that God would use this for His glory and to touch many lives. We will continue to pray...
The future can be a scary place. The unknown can be overwhelming, especially when the known has so many struggles. This is when we really need to trust in what God has promised.
"I will never leave you nor forsake you." Hebrews 13:5
GO LIAM!! Good luck on your tests this week. We'll be thinking about you, praying, and sending good thoughts your way!
The Collins Family
Oh Gretchen, I know I don't know you, but you are amazing. Thank you for sharing this terrible, yet so touching journey. It makes me even more aware of the daily struggles so many people face that go unnoticed from the outside world so busy with the said/she said dramas. This has been a challenge no parent should have to be presented with, but you are doing so well and the human body and spirit are sooo resiliant. Liam's a little fighter and you just tell Dartmouth to get ready! I'll keep on chanting and will light a candle of prayer at St. Patrick's for Liam tomorrow...
Good luck on your tests week, Liam! I will be sending all of my good thoughts and energy your way!
With love,
Just a NYC mom
Our love and prayers to our brave, beautiful and precious grandson as he goes through the grueling tests this week on June 14, 15 and 16.
Living in Michigan and being so far away is and has been very difficult for us as grandparents. We are so very proud of our son Larry and his wife, our daughter-in-law Gretchen as they go through this diffcult time, clinging to each other for support and strength. The build-up to and the waiting during and after these tests is a very stressful time for both of them. Yet, through all of this they continue to be an inspiration to all of us. With their busy schedules and demands they must face working and raising toddlers, they somehow, with their love for each other and their children, remain ever faithful; trudging on exhausted and battle-weary from fighting what must seem to be a never-ending battle against this cancer.
This disease that has robbed them of what used to be a happy, normal life; a life that consisted of a mom and dad, 2 dogs, a brother and a sister playing in the pool, watching the frogs in their pond, playing on the swingset and running in the grass chasing butterflies and being happy and carefree. These two valiant warriors, my son and daughter-in-law, both so beautiful and so very much in love have had to put aside their very precious time together as friends and soulmates to stage a battle, one they were never expecting and has taken its toll on them to save our precious grandson from this disease. We as parents and Liam and Ella's grandparents take our hats off to them and want to say to them, Well done Larry and Gretchen, well done.
Our Love and Prayers
Mom and Pops
Copyright © 2007 by Joel Osteen Ministries
"Trusting God in the Tough Times"
Today's Scripture
“Trust the Lord completely; don't ever trust yourself. In everything you do, put God first, and he will direct you and crown your efforts with success” Proverbs 3:5-6 (TLB).
Today's Word from Joel and Victoria
We all face tough times that challenge everything we believe. And we often have the hardest time seeing God's hand when we're in difficult situations - because we just don't understand what He is doing. But the exhilarating thing is that God uses tough times to show us His favor and blessing. It may not feel comfortable at first, but seek God's face all the more when you're struggling. When you ask Him, He will give you everything you could possibly ever need to make it through the trying times. And He will give you special eyes to see Him through all of your hardships. Your human understanding will fall short, so just give God full control and watch the blessings flow.
A Prayer for Today
God, give me the eyes to see Your face in the midst of my troubles. Thank You for never leaving me and for giving me what I need to persevere through my roughest days. In Jesus' Name. Amen.
We just wanted to wish you great, good luck on your tests this week, Liam. We think of you often and hope to meet you some day. We love the picture of you in your fireman's uniform!
Kate, Guy, and Elio
My son, Garrett, attended First Step in the 3 year old class and I have been keeping up with Liam through the blog. Our hearts and prayers go out to you and we will continue to pray for a wonderful prognosis. You all sound like an amazing family and hopefully one day you can look back in amazement of what you have overcome. The Schulz Family
Hey Liam, Gretchen, Larry and Ella...I haven't gone a day without keeping you in my prayers. I send you all my love and support. You are loved and in my thoughts....here's to all positive energy coming your way. Great job Liam at being such a strong beautiful boy....you are wonderful.
All the best,
Sandy Kortright
“I lift up my eyes to the hills-where does my help come from? My help comes from the LORD, the Maker of heaven and earth” Psalm 121:1-2 (NIV).
Praying without ceasing.
Liam,
You're an amazing kid, and I'm keeping my fingers crossed and my prayers loud and clear, hoping its time for you to start on the last phase of all this. Because boy, oh boy, Liam, I can't wait until this is all part of your past, and you ask Mom and Dad to tell you the story again, about the time when you were a really little boy and you got sick for a while, and then got all better.
XOX
With love and good thoughts,
Marge
We were so happy to read about Liam's tests results today. Way to go Liam! We will be praying for you, as always, especially in the weeks ahead. Thank you for keeping us updated through your blog-Ella loves to see pictures of her friend Liam, particularly the fireman pictures!
Love,
Janna, Kevin and Ella Jackson
Wow!! So great to hear that Liam's test results were so wonderful! It was a nice feeling to get tears of JOY in my eyes this morning!! Getting over this hurdle is HUGE! Best wishes as you start the new phase of treatment! We're all pulling you!
Jen, Rob & Chris Dixon
What a great moment....happy father's day!
We are so happy for the news. We will keep thinking of you during the new stage of treatment.
Nicole, Jawn, Alex and Josh
I had the great pleasure of meeting Liam and Ella today when my co-worker and I dropped off the dinner we made at your apartment. They were just adorable and you literally had to pull us away becuase I think we could have spent the entire day there playing with them. I laughed as I read your latest entry because when we told Liam we had to go back to work all he kept asking was "Why?" :)
CONGRATULATIONS LIAM! You have reached a BIG milestone! Once you get through radiation and this next phase of 3F8 and move onto the 8 week intervals you will be able to really start reclaiming your life! I'll bet you will have the BEST time in preschool this year!!!
Hope you are celebrating this weekend! You ALL deserve it!!!
Jennifer Click
www.caringbridge.org/va/carolyncoveney
Hello Prince Liam:
I have so enjoyed getting to know you through this blog. Your friends "the Fireguys" told me about you.
I had cancer last year too...mine was Hodgkins Lymphoma......your story has helped me understand how my family felt when I was being treated.... it sounds like you have been very very brave...just like your fireguys.
Nice to hear that you are waking up to the world before the "c" word and that chemo fog is lifting..it takes a while for the sun to come out and all the fog to disappear..but things do become bright again...I promise! Hours will go by when you or they won't even think about the "c" word.
Looking forward..... the hair grows back .. the pain of Neulasta shots and the bone pain becomes a distant memory and hope, smiles and giggles return...
the tests still aren't fun...and we have them quite often....but we do what we have to do...don't we Liam?
I also share your love of frogs, star gazing and the sound of a firetrucks' horn......
I look forward to healing with you....YOU MAKE ME SMILE PRINCE LIAM......
thanks for sharing your journey....I wish my family would have had a way to share their feelings.....the "c" battle "fear" isn't nearly as bad for the patient...the toughest thing, as a patient, is to see "the fear" in our mommy's and daddy's eyes.....When we see that look of pity in their eyes..That's the worst...we grow up thinking Mommy's and Daddy's fear nothing. Even at my age..I still think my daddy can do anything....he's the bravest man I've ever known..seeing their fear, especially his.. scared me more than anything..
SO, Mommy and Daddy...keep your chins up..... like the fireguys....Be Brave...never....never.....never...QUIT!
Statistics mean nothing...laugh out loud, dance, sing, smile and have fun! Let your hair down! Liam (and you both) will love it!
Prince Liam...have a happy summer!
And remember...It's not the years in your life that count....it's the life in your years (Abe Linclon)
Beth Hall Moisant
bethhallmoisant@yahoo.com
I recently learned of little Liam through an event we participated in - My Way or the Tri Way triathlon in CO. We were an event sponsor. We are also mothers of young kids and I can feel your pain and hurt. I will pray for all of you - know that God is watching over you and holding Liam in the palm of his hand. He is an angel, a warrior and a miracle. I will pray for you tonight - that you may have strength and peace.
With Love,
Lisa
BornFit
When you go through deep waters and great trouble, I will be with you. When you go through rivers of difficulty, you will not drown” Isaiah 43:2 (TLB).
Praying for comfort during this new phase and endurance to win this battle. Lean on God, He will be there to carry you through each day, each hour, each minute.
We check in on Liam (and all of you) all the time. We usually don't leave a post to let you know that we're thinking of you, however, we are. Caroline makes sure to keep Liam in her prayers and always asks God to help him to get better. We want you to know that all of our good thoughts are sent your way and that we think that Liam is just the most remarkable little guy. Hugs to Liam and Ella and we hope that someday, in someway, we can help you. We're just down the road off of Petticoat Lane.
Keep fighting, Prince Liam!
The Hornby Family
Tracy, Robert, Caroline & Kate
(From 1st Step)
Gretchen,Larry and Liam,
All of us were SO disappointed when we heard we had missed your visit at school! We continue to think about you every day and look forward to Liam joining his friends in the three year old class as soon as he is able.
Jill and the staff at First Step
Will be praying for wisdom and discernment for you in making these very difficult decisions.
"For the Lord grants wisdom! His every word is a treasure of knowledge and understanding." (Proverbs 2:6)
But when the Friend comes, the Spirit of the Truth, he will take you by the hand and guide you into all the truth there is." (John 16:13)
Gretchen and Larry,
I am a friend of Hannah Kluger's at USHG...we donated platelets together for Liam and cooked lasagna which we brought to your apartment a few weeks ago. I am writing because I wanted to tell you what an absolutely amazing surprise it was to meet both Liam and Ella when we dropped it off!! What beautiful, sweet, fun children! The minute we walked in Liam grabbed my hand and wanted me to start playing with him. We threw superballs down the hall and then ran and got them several times. We pushed a few trucks, too, but mostly just bounced the balls down the hall and then scooped them all up to do it again. I was so honored to meet Prince Liam, and to actually have the chance to play with him for a little while. He kept asking us "why?" when we had to leave...and I didn't really have a good answer. Work somehow doesn't cut it with kids, and I understand completely :)
My heart goes out to all of you...and I hope to have the chance to see Liam again soon. He is precious.
Kerry Sullivan
Keep fighting, Prince Liam. We're cheering for you! You're going to beat this moster!
All our best,
Tracy, Robert, Caroline & Kate Hornby
"For nothing is impossible with God."
Luke 1:37
Still reading...still inspired by Liam and your courage and ability to keep fighting this every day...wishing your family well.
Liam is continually in our thoughts and prayers. We read his blog and love looking at the photos. My girls, Tessa 7 and Cara 6, are both concerned about him and wanted to do something to help. They had a lemonade stand for Liam two weeks ago and raised money to donate.
We have a new chant, "Go Prince Liam the Brave!!"
Lisette Dell'Apa
Dear Gretchen and Larry,
I found your web site from another childs caringbridge site. My son Ryan is also getting 3F8 treatment at MSKCC. I read your July 4th post by Marge Perry and I thought it was particularly insightful. I have borrowed it to share with my family, each of whom have endured observing the same treatment. If it is OK with you, I will also share it with some friends who need to know what to expect.
Sincerely,
Henry Malarkey IV - Father of Ryan NBIV - dx 3/6/06,
Primary Refractory after double stem cell tx, NED
12/8/06 on 3F8/GMCSF protocol at MSKCC. 8 Rounds completed! No HAMA yet!www.caringbridge.org/visit/ryanmalarkey
Hebrews 10:23
"Let us hold fast to the confession of our hope without wavering, for He who promised is faithful"
“Draw close to God, and God will draw close to you”
James 4:8
Hi Gretchen.
Greetings from your old, old stomping ground - Richmond, Va.
I've been reading Liam's blog over these past few months and each time I read it I literally want to fall to my knees and pray to God that he gets well; a feeling you must have every minute of every day.
It's incredible that there are wonderful treatments to help him no matter how horrible they are to endure. Your blogs sound like you all are battling this with 1000 percent of your bodies, minds and soul.
I am so sorry you all are having to go through this - especially for little Liam. He'll be back on the beach next summer.
I will keep you in my prayers as you navigate the 24 months ahead.
Jennifer Shepard Pounders
Glad to hear things are going...
Go Liam and the Holt-Witts!
I heard about your Prince Liam through Devin Reid's blog - or a connection from his blog. I just want you to know that I am very touched by your story, and captivated by Gretchen's log - I pray for your son daily - God bless you all and give you strength! Suz
Gretchen & Larry: Thanks for keeping up the blog. I check every day to see how Liam (and you) are doing. I never cease to be amazed at Liam's attitude - he is quite a little boy, what a personality!! He has so much character - I bet all the people at the hospital adore him. I'm glad you've made it through the radiation. Every treatment is one more step in the right direction. Hang in there!! Soon this will all be a memory - a very small amount of time carved out of a very long, full life for Liam.
We continue to think of and pray for you all.
Cindy & Scott Goolsby
Gretchen, Thank you for sharing another beautiful post...Liam and your family continue to be in our prayers.
Sheila
Thanks for this week's update, Gretchen - your ability to communicate regarding your son's daily struggles and triumphs totally amazes me. I pray for Prince Liam daily - he seems like such a strong and determined young man. God bless you all. Will pray especially hard next week, as I know the 3F8 weeks have to be particularly difficult. God be with you! Suz
Thanks for the update. You all just keep on fighting. Some day Liam will be playing in that sandbox as a healthy little boy too.
Prince Liam and family:
I wanted you to know what a source of hope comfort and strength that you have been for me. I also am a cancer survivor and I also am friends with your firemen.
They have given me hope ad comfort and: I ,like you, share your joy of firetrucks and listening to frogs on quiet nights.
My battle is beginning again and your battle is moving on but we can never forget to keep fighting. We cannot give up and we must enjoy eveything that life has to offer us.
Thanks for the updates and the hopes and thanks for sharing your journey.....and like my favorite fireman says" keep your chin up and keep a smile on that pretty face".
Liam:lets stay brave like our firemen and we will be just fine."
NEVER NEVER NEVER give up.Its not the years in our lives that count, but the life in our years.
Be brave, Liam....love beth
“For I am about to do a brand-new thing. See, I have already begun” (Isaiah 43:19
Liam and your family are such an inspiration. Keep on keepin' on...we'll keep on praying.
Psalm 55:16-18
But I call to God,
and the Lord will save me.
Evening and morning and at noon
I utter my complaint and moan,
and he hears my voice.
He redeems my soul in safety
from the battle that I wage...
Psalm 55:22
Cast your burden on the Lord,
and he will sustain you;
he will never permit
the righteous to be moved.
Psalm 56:3-4
When I am afraid,
I put my trust in you.
In God, whose word I praise,
in God I trust; I shall not be afraid.
I am so happy you are keeping this blog, b/c I think it would be very difficult for most people to empathize the daily trials you must endure and how draining it all is. This is a long journey, not unlike running a marathon or the road to the Super Bowl. Your response is similar to a coach saying, "we can't get too excited about this victory. It's a good thing, but we have to focus on winning next week." And you do just that, with both grace and a solid game plan. In reading so much about lengendary coach Bill Walsh today, they say he was the master of "brilliant stratagems." Stratagem. I looked up the definition and I think that's what you and your team of the BEST doctors at the BEST facility is going to pull off too. Thinking of you.
When life has you down whether through sorrow that seems too hard to bear or circumstances that make each day a morning-to-night grind, trust His power and hold on. He will give you the strength to keep from falling.
"God is my helper." Psalm 54:4
Dear Gretchen,
I read your blog every day. Your writing always tugs at my heartstrings; more so since meeting you at Sloan on the day of Toby's surgery. We continue to pray for Liam as we pray for Toby and all the children on the Pedriac Cancer Floor at Sloan. We have HOPE and we believe in MIRACLES. God Bless your family, Toby's Grandmother Merci
Therefore, I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours”
Mark 11:24
Gretchen,
Lucille Barilla, I am an editorial friend and I just heard about your precious son. I am praying for him every day. As a mom of three, I can only imagine what your family is experiencing, but if Liam is half as strong as his mommy and daddy, he's going to be great! You are in my heart.
We wanted to leave you a quick post to let you know that we continue to hold Liam in our thoughts and prayers. Thank you for all of the updates posted. We hope to see Liam & Ella at 1st Step in the fall. If you ever want to get together for a play date when you're home in NJ or even when you have down time in NYC, please do not hesitate to let us know. Last minute always works for us. I cannot imagine how busy you must be juggling all of the hats you have to wear in any given day. If there is anything we can ever do for you back in NJ to help in any way at all, please feel free to ask.
Sincerely,
Tracy, Robert, Caroline & Kate Hornby
“God is with us; He is our leader”
2 Chronicles 13:12
Praying that you will feel the presence of God with you and with Liam every day, every step.
“Be confident of this. He who began a good work in you will continue to perform it until it’s perfectly complete”
(Philippians 1:6).
I hope the surgery yesterday went well! I just read the blog and admire your pros/cons list. You are amazing at THINKING through all this FEELING stuff. I think of you all and pray for you each day.
love,
Emily in NC
MC '98
I work at Sloan and just wanted to let you know that this morning as a very nervous 21 year old patient went in for a 12 hour surgery with Dr. LaQuaglia, he mentioned that he had spoken to you the day before. He said that if Liam could do it then so could he. He was truely inspired and I believe it really helped him get through the morning.
I have been following the journey with your precious little prince.
Please listen to this song by Christian artist Mark Schultz. When I heard it, I thought of you. You are in our prayers. Know that God listens and He answers.
"I'm down on my knees again tonight
I'm hoping this prayer will turn out right
See there is a boy that needs Your help
I've done all that I can do myself
His mother is tired
I'm sure You can understnad
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes
CHORUS:
Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son
Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's so tired and he's scared
Let him know that You're there
CHORUS
Can You hear me?
Can You see him?
Please don't leave him
He's my son
Psalms 103:1 - Praise the Lord, O my soul; all my inmost being praise his holy name.
As we look at this verse we see King David commanding his soul to praise the Lord. If you look at the previous passage we see that David had a cry for help (Psalms 102:1 "hear my prayer, let my cry for help come to you"). Though David may have been going through a difficult time, he still commanded his soul to praise the Lord. He declared that his inmost being will praise his savior.
I want to encourage you today to command your soul to praise the Lord. Tell your self, no matter how many curves life brings me, I will praise the lord. Your praise will bring peace to the toughest situations. The Bible says that God inhabits the praises of his people. Your very praises causes the habitation of the Lord to rest over you.
Praying for continual peace and strength for Liam and your family.
Dear Witt family,
I have been following Liam's journey from the beginning. Please know, you are all in my DAILY thoughts and prayers. There is not a day that goes by that I don't check your site. Liam's sweet face is unforgettable! He shares his name with my 3 year old son. I must say though, there is only ONE Prince Liam the Brave, and that he is, BRAVE! Your son is an inpiration.
I will forever flood heaven with prayers for Prince Liam and your family.
Andrea Bergman
Janesville, Wisconsin
Just a quick note to let you know that we're thinking of you. Keep up the fight, Liam! We're looking forward to seeing you run down the halls of First Step this fall.
All our best,
Tracy, Robert, Caroline & Kate Hornby
Hey Liam and Family! I hope that everything is going well and that Liam is kicking NB's butt!!
LOTS OF LOVE!
Em - Greensboro, NC/Chatham, NJ
Dear Gretchen and Larry,
Just know that so many people are thinking of you, your son and your family. As the day closes, my thoughts turn to you and I wish you health and healing. I hope you gain strength from the energy we are all sending your way.
Checking in to let you know not a day goes by without a prayer for all of you - Liam, Gretchen, Larry, Ella, the doctors and all those up there supporting you in person.
My sister and her husband (at the young age of 26) just became caregivers for his dad who has stage 3 throat cancer. He is going to be fine, no doubt, but we are learning first hand how much cancer sucks and sucks the life out of everyone - the patient and the caregivers. We have a whole new insight into your perspective.
Your words ring through as I try to support her. Lee's tips on being a good friend have helped all of us, too. They put a cooler on the front porch with a note on it on day one, thanks to her list and her appearance on GMA.
You are giving so much just by sharing so in return we are giving what we can each day by praying for Liam and all his caregivers.
Hoping all is well. . .
Emily
Just hoping all is well as there hasn't been an update in almost a month. Our prayers are with you always and we check the site often for updates. May God be with you.
Gretchen & Larry: who can't relate to that - superstition - the fear of saying something good and then having something bad happen. I totally understand. Thanks for the update, I've been checking a lot lately, and assumed (corretly this time!) that no news was good news. I'm so happy for Liam and all of you that he's doing well - good luck on all the tests next week.
Dear Witts,
Thank-you for writing and letting us know how you and Liam are doing. You are all constantly in my thoughts and prayers. A lack of writing on your part will never lead us away, it will only make my support stronger. As you explained, writing about your situation isn't always easy. I do very much appreciate you sharing your journey with all of us and letting us in. Thank you. You are all an inspiration and will forever be in my prayers. Prince Liam will always have me in his corner!
Thank-you
Andrea
For the vision is yet for an appointed time…though it tarry, wait for it” (Habakkuk 2:3 KJV).
Always in our prayers and thoughts.
Its really great to hear that Liam is doing well. After the month of silence, I was worried that something had happened, but didn't know who or what to ask. I hope that things continue to go well for you all!
Em Galbraith
Liam has been in my heart and thoughts for many weeks now as I have been reading your blog. I am sooo happy to read that he is growing and doing well, considering everything he is going through.
I am sponsoring a Silpada jewelry show at my home; the proceeds will be donated towards the development of 3F9 treatments, as suggested by Liam's grandma, Sharon.
A lot more people know about Prince Liam from my email blast about the jewelry show, and have sent him their love and blessings.
Hello Liam,
It's Brian Gallo from the firehouse. I just wanted to know I was thinking about you and I'm sorry I haven't seen you in awhile. I moved to a different firehouse. But the guy's from Engine1 Ladder24 have been keeping up to date. I hope to see you soon.
Oh how lovely, lovely, lovely to read the story of Liam and his playdate - I am unabashed to say it made me weepy. And the delightful accompaniment of photos (peeking into the firehouse my favorite) was a real treat. Thank you for sharing so openly with us. And thank you to Liam for reminding us to live in the moment. I'm off to dance to the opening of Thomas The Tank Engine.
In our thoughts as always,
Alexia and The Bregman Family in Denver, CO
"As for me, I will call upon God,
And the LORD shall save me.
Evening and morning and at noon
I will pray, and cry aloud,
And He shall hear my voice.
He has redeemed my soul in peace from the battle that was against me"
Psalm 55: 16-18
Storming the gates of Heaven with prayer at evening, morning and noon for Liam and your family. Toby sounds a lot like Liam, and we will add him to our prayers....
Thank you for sharing the great news about the test results! Liam continues to amaze us with his wonderful personality. We have no doubt he will accomplish whatever he sets out to do!!
Kevin, Janna and Ella Jackson
That's SUCH good news about Liam! We are so very happy for this news. I have to say, I do like Liam's career choices - I'm married to a fireman (Larry's cousin), doctors are fantastic people, and of course, mothers (yeah, that one will be difficult to accomplish!), what can you say about mothers, very special people indeed. We are just so pleased for you all. This has to be a big heavy sigh of relief right now. I know there's a lot left, but it seems to be moving in the right direction. God bless you all.
"But thanks be to God! He gives us the victory through our Lord Jesus Christ." (I Corinthians 15:57)
Great news! Go Liam!
Hooray for Liam! We are soooo happy to hear this news. I have always felt that Liam blazes the trail for all the NB families that follow him. When things go well for the Holt-Witts, it's wonderful for all of us. Go, Liam!
much love,
mooki, stephen, yoni and toby
Hey little prince! I have not been able to read your blog for a while since we moved back to Germany and were without internet for a few weeks. It is wonderful to read about your progress and you are always in our thoughts. We send all our love and lots of positive thoughts & strenght for the comming week of treatment for you and your family!!!! Micha & Andy & Emma from Germany
When you said you having been doing a lot of dancing lately, it reminded me of the song I like to dance to with our children:
Lee Ann Womack - "I Hope You Dance"
I hope you never lose your sense of wonder
ou get your fill to eat
But always keep that hunger
May you never take one single breath for granted
God forbid love ever leave you empty handed
I hope you still feel small
When you stand by the ocean
Whenever one door closes, I hope one more opens
Promise me you'll give faith a fighting chance
And when you get the choice to sit it out or dance
I hope you dance
I hope you dance
I hope you never fear those mountains in the distance
Never settle for the path of least resistance
Living might mean taking chances
But they're worth taking
Lovin' might be a mistake
But it's worth making
Don't let some hell bent heart
Leave you bitter
When you come close to selling out
Reconsider
Give the heavens above
More than just a passing glance
And when you get the choice to sit it out or dance
I hope you dance
(Time is a real and constant motion always)
I hope you dance
(Rolling us along)
I hope you dance
(Tell me who)
I hope you dance
(Wants to look back on their youth and wonder)
(Where those years have gone)
I hope you still feel small
When you stand by the ocean
Whenever one door closes, I hope one more opens
Promise me you'll give faith a fighting chance
And when you get the choice to sit it out or dance
Dance
I hope you dance
I hope you dance
I hope you dance
I hope you dance
(Tell me who)
(Wants to look back on their youth and wonder)
I hope you dance
(Where those years have gone)
(Tell me who)
I hope you dance
(Wants to look back on their youth and wonder)
(Where those years have gone).
Liam has been choosing to "dance" and he is an inspiration to all! God bless him and your family!
Find rest, O my soul, in God alone;
my hope comes from him.
He alone is my rock and my salvation;
he is my fortress, I will not be shaken.
My salvation and my honor depend on God;
he is my mighty rock, my refuge.
Trust in him at all times, O people;
pour out your hearts to him,
for God is our refuge.
Psalm 62:5-8
Thank you for your update. I am sure that you were a blessing to that family, an angel who was there for them through this hideous nightmare, despite your own pain and fears. You will stay strong and keep persevering, I hope this time comes to an end for you and all your energy and focus can be on all the joys and happy times you will have with Liam and his sister. I wish there was a way to ease your burden, or better yet take it away. But all you can do is stay positive and put Liam in the trusted hands of his doctors, and in the words of Winston Churchill, never give up. Never, Never, Never, Never give up. Thinking of you.
Gretchen and Larry -
Your post about the painful getting of wisdom and how you could help the new neuroblastoma mom reminds me of two quotations. One I couldn't find but goes something like, "wisdom is bought in a dreary market where no-one wants to buy" and other, even cheerier, I came across in Bartletts. It's from Aeschylus: "He who learns must suffer. And even in our sleep, pain that cannot forget falls drop by drop upon the heart, and in our own despair, against our will, comes wisdom to us by the awful grace of God."
Your understanding of why war veterans don't talk of their experience reminds me also of the guy who wrote "All Quiet on the Western Front." It's a really good novel but he was disdained by his fellow veterans, as he only served one month in WWI and people who served longer felt he could only write about it with such facility because he hadn't experienced it very long.
Yours,
Judy Parr
I am glad Liam is doing so well! Does the other little boy that you just met have a website? The one you sent the carepackage to. I am praying for your family.
Awesome pics, Gretchen! Thanks for sharing.
Hi,
I am a friend of Sharon Minnich and Annette Carpian of Am Haskalah, of Allentown, and I live in Texas.
I was wondering if I could possibly submit the Sept. 28th blog entry by Gretchen to the Chabad website (I have a friend who is a publisher there). I think the exposure of the story to the international audience that reads these pages, may (I pray) touch more than one heart and (I pray again) result in the possible donation of more toward Liam's needs.
Please let me know asap.
Sincerely,
Jerry
We are in awe of Liam's spirit! While we've never met, we look forward to seeing Liam run down the halls of First Step with our girls. Keep up the fight, Liam. You're in our thoughts and prayers!
Tracy, Robert, Caroline & Kate Hornby
Dear Gretchen & Larry,
I just wanted to let you know that I have been following Liam's progress and I think of you almost daily. Please know that my prayers are with you all. I know some of what you feel after having to deal with Kristen's illness. Being told that she would be put on the heart transplant list was like a punch in the stomach and the heart. We were fortunate and I know that you are finding the strength to get through this because you love you children so very much. I really do think of you all so often and I just wanted to pass on my love and prayers to you.
Much Love,
Emily
Dear Gretchen and Larry,
Your cleverness and patience are inspiring and impressive.
I took Accutane for acne as a 20 year old. (1 round cured my skin for life!) Someone introduced me at that time to Carmex (the little canister, not the squeeze tube) and I found it was the only thing that worked for the inevitable dry lips that Accutane creates. They sell it at CVS here. If you need it and can't find it, email and I'll send some.
With love and well wishes,
Hi, Liam.
I want to say that I Love You and I Hope to see you soon.
Gabriel!!!!
Where is the floor polisher!!!!!!!
I found your blog through Marcie Runs the Marathon. I wanted to give you all a virtual hug--I am a childhood cancer survivor (ALL) and your story about Liam taking pills make me cry. I was 13 when I was diagnosed and had never swallowed a pill in my life. Needless to say, learning to take pills was TRAUMATIC. A huge high-five to Liam for being so much more mature about it than I was!
Lord God,
You have called your servants
to ventures of which we cannot see the ending,
by paths as yet untrodden,
through perils unknown.
Give us faith to go out with good courage,
not knowing where we go,
but only that your hand is leading us
and your love supporting us.
Gretchen & Larry -
I just had to share our small world experience with you. I recently participated in the Nike Women's Marathon in SF benefitting the Leukemia & Lymphoma Society. While we were at the pasta party the night before, we had the chance to sit with some members of the Northern NJ team that we hadn't really met before. It turns out that their niece is being treated at MSKCC. Shirley (the woman who walked for our team in support of her niece) and I began talking and it turns out that she knows you and Liam. She had nothing but amazing things to say about your family and about how brave and adorable Liam is. We both had Liam's name on our shirts the next day at the marathon. While we've never actually met, we keep Liam in our thoughts and prayers and hope for the day when Liam's health is no longer something to worry about.
All our best,
Tracy, Robert, Caroline & Kate Hornby (from 1st Step)
Okay, I admit it - I keep looking here with the hopes of seeing Liam and Ella in Halloween costumes - some "normalcy" in your lives. :) Hope that both of them had a chance to be kids and dress up in fun costumes.
Hi,
My name is Jen and my mother, Jackie, works at the preschool Liam attended. She forwarded Liam's blogspot to me some time ago and I have been reading them ever since.
Recently, I ran a marathon with my sisters to raise money and awareness for cancer. Collectively, the women who ran the race raised $18.5 million for research, education and medication.
I am currently still fundraising for cancer also here in Alaska with the same concept! We are calling ours "Doughnation," and are getting more and more orders from people affected by cancer everyday!
I truly believe that with everyone's help, positive change with cancer research and medication will come!
My heart, thoughts and prayers are with you!
Jennifer
Larry & Gretchen:
Just wanted to let you know that I sent emails to over 400 people today (borrowed the photo of Liam and I that you posted on your site). WE WILL SELL YOUR COOKIES! I already have return emails from as far south as New Orleans from friends of friends who have responded and are ordering cookies and forwarding my email. The chain is long. Keep up the great work. We'll beat this thing yet.
Barry Traylor
When especially difficult circumstances invade our lives and remind us of our powerlessness, we have an all-powerful God who works on behalf of those who trust Him.
"The Lord is my strength and my shield; my heart trusted in Him, and I am helped." Psalm 28:7
We are praying for Liam and your family for strength during this very stressful time. He continues to be in our thoughts and prayers daily and we will pray specifically today for his leg pain and for his appointment today.
Hello Parents and family of this precious little boy.
I received your story from a co-worker and it is very touching. It's really terrible when diseases like thise stricken people, especially children.
I will keep Liam and the family on my prayer list, and forward this story to my Christian friends and Christian organizations.
It's vital to keep your faith in the goodness of God's love and mercy everyday of your lives, especially during times such as this. God is the only source that grants miracles.
Here is a reassuring scripture and prayer for you.
2Corinthians 1:4 God who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God.
Father, I thank you for awesome love, mercy, grace, and peace. I ask that you would be with this family during their time of trials, I pray that they will receive your peace which surpasses all understanding. Please heal Liam according to your will and touch the minds and hands of all the medical staff that come in contact with this child in the name of Jesus our Lord I rebuke all diseases and sickeness away from your child and his family, I ask for your strength to overtake their soul and I pray for their hope to increase in you. I lift the desires of this family up to you for your good intervention. In the name of Jesus I ask all these things unto you, Amen!
God Bless you!
Gretchen and Larry,
Our prayers are with you. Larry, you may remember me from my days at Smart workign with Oxo. Mari just forwarded this to me. I read through the story, bought cookies and forwarded the email to about 350 emails from my contact list.
Stay strong. This is an amazing effort you are producing and I believe inspiring beyond expectation.
Steve
As a fundraiser by profession, I want to commend you for taking up fundraising for this important cause. I do have one tip that may make your cookie sale idea more successful. Rather than asking people to "buy" cookies that cost $40, including shipping and handling, you may be more successful if you ask people to contribute to Band of Parents and for a minimum contribution of $40 or even $50, they would receive the cookies. This would encourage larger gifts, and the donors wouldn't feel like they were spending $40 on cookies, which seems pricey for cookies. It's just a thought. I ordered cookies myself already, but if things continue to be especially difficult with Liam these days, just consider it a contribution and don't worry yourself with sending me the cookies. You're all in my prayers.
Dear Mr. and Mrs. Witt,
I too have an uncommon form of lymphoma and the best way I can support you and your son is to strongly recommend that you research the role diet plays in causing and promoting cancer. I will not preach to you. Only I beg you to do some reading. You will learn from people smarter than me that cancer loves sugar.. Also, animal-based foods (meat, fish, poultry, milk and eggs) lower the probability of retarding or reversal of cancer growth. Conventional oncologists will not tell you these things. You must learn for yourself.
I'm sure you can find these on the web:
1. Living Foods for Optimal Health - Brian Clement
2. The Rave Diet Book and DVD
3. The China Study - T. Colin Campbell
If the reason i got cancer was to tell others about how to fight cancer from their own kitchen, then the old saying is true - 'everything turns out for the best'.
I do not have a great success story to tell as I have just begun my road to recovery. I hope Liam's road employs all the cancer weapons in our arsenal and this includes a diet.
Best regards,
Larry Kaiser
LSK1000@gmail.com
Liam! I saw you and Ella on TV, and you guys were so cute!! I loved seeing you with your firemen friends, and with your own locker in their firehouse! How impressive! Keep fighting, you are doing great!!
Gretchen,
Our thoughts and prayers are with you and your family and especially Liam. My nephew has just been diagnosed with Stage 4 NB. I want to help you guys in any was possible with fundraising. Please contact me if possible. devilliersw@yahoo.com
God Bless
Warren de Villiers
Here's one way to get $35,000 for your cause. Cookie Magazine is giving $35,000 to the cause of one outstanding mom. Surely, someone who knows Gretchen well could recommend her. Here are the details:
* Essay
In 250 words or less, tell us why your nominee should be the Smart Cookie Award honoree. Each nominee will be judged equally on the following two criteria: 1. How she juggles her family life while working to better the lives of moms, kids, or both. 2. How her volunteer or professional work has made a difference and how original her vision is.
Here's the link to the website: http://www.cookiemag.com/magazine/sweeps/smart_cookie_2008/entry/long/
I just watched the CNN video about your cookies for cancer drive. I did an individual drive of my own for children with cancer. I raised much less money, but it feels great to see somebody so dedicated. I hope that someday I will be able to create a fundraiser just as great.
You are an inspiration.
Here is a link to the fundraiser I did
Almost five years ago now, I met a woman on a support group website for parents who lost a baby during pregnancy or shortly after. She lost her son and I lost my daughter, both at 21 weeks of pregnancy. She is now one of my best friends, and like you have mentioned in many of your posts, the shared bond of our experience makes her very special to me.
Anyway, her birthday is coming up, and Sunday night on the phone I apologized to her because I just couldn't get it together to get her a decent present this year. We have a three-year-old son too, and as you know it makes life very busy!
The next day I happened to walk into our office's copy room just in time to catch the last half of the story on CNN featuring Liam. I was so drawn to your sweet little guy, and my heart ached for what you all have had to endure. I thought of my son and my stomach lurched. I thought of my daughter, whom I never even got to know but still miss every day, and then I thought of my friend's son whom she'll never know. I decided at that moment that some of your cookies would be the perfect gift for my friend--a gift that will hopefully help in some (albeit small) way to prevent other parents from losing their most precious little ones.
I so admire your strength, love, and honesty in sharing your experience. I will keep up with you here on this blog and look for ways to help. I will think of Liam often and send healing thoughts his way, and I will savor with gratitude each day of health that we are given with our son.
Gretchen, I saw Liam and you on GMA today. I'm so happy to meet Liam, the passionate, lively and brave person that he is. My thoughts and prayers are with all of you.
Olivia Wu
Gretchen and Larry, Hi!
I missed your GMA appearance this morning, but Charlie emailed me to let me know. He said you were terrific and inspiring. I went to your blog and watched the WABC clip about your cookie fundraiser - awesome! I know you're tired and worn out, but what incredible work you and your Band of Parents are doing!!
I looked through your photo gallery and loved all the pics. I have to tell you I am capitivated by Liam's eyes - sprinkles of fun that make three year olds special and but his eyes are filled with the unusual warm kindness of a person born with the gift of wisdom. He is truly unique (but, you know that already).
Liam is lucky to have giants for parents!!
Happy New Year!
Peggy
I first saw your story in my most recent Parents magazine. I was instantly captivated and knew I had to find the full story of Prince Liam.
I too am the parent of a "Chemo Kid", although my child did not face anything near as life threatening I understand the stress and frustrations. My daughter was treated for a year for benign bilateral optic gliomas.
I look forward to reading the entire blog, starting at day one. The story of strength that children who overcome childhood cancers have is amazing.
Prince Liam - you are an inspiration. Keep doing so well little buddy.
We've been following since the beginning... (My husband helped to put together the Inman Hockey Tournament and we did "Kisses for Liam" with my kids at school). I am so glad to see that the Cookie Sale was such a success and that Liam is doing well.... (although you do make me very nervous when you don't post for a while). I ran out this evening to buy Parents... and can not wait to share the article with everyone at school who ask me about Liam constantly. You guys are such an inspiration. I don't know where you muster the energy to not only take care of Liam but to forge a path to begin a revolution in bringing atention to changing cancer treatment for all children on such a HUGE scale. You guys do NOTHING on a small scale huh?!?! Something tells me you're fierce competetors!!! You may already know Julie Webber, who very recently lost her little girl to neruoblastoma, but here is a link to her page and everything they are doing to fight childhood cancer. I hope she has joined the Band of Parents but if not, you may want to drop her a line! http://www.myspace.com/babykaylaweber2
Keep fighting Liam... We're all here thinking of you!!!
Our prayers are with Liam and your family. Our little Drew was just diagnosed with stage 4 neuroblastoma in November. We are at the top of the scary roller coaster you've been on this year. Drew is being treated at Children's Memorial Hospital in Chicago. I'd love to talk with you sometime about Liam's treatment. I read about it in Parent's magazine. It sounds so different from what Drew's doing. I'd like to "compare notes" sometime. Keep in touch and keep faith!
Kate Perschon
Schererville, IN
www.caringbridge.org/visit/drewperschon password: drewperschon
I was touched by your article in Parents magazine. Especially the pictures. To me, I saw a mom who, though exhasuted and worn, is eminating a strength from within. I saw a mom not only doing what has to be done, but a mom doing her divine, god-given task of nurturing. Nothing is more beautiful than a mom comforting her child and sharing in their heartache. I was reminded how important it is to be a mom and how much my children need me.
I pray that you and your family will have the strength to battle this disease and that little Liam will improve in health. God bless you and your family. Thank you for sharing your story.
Liam and your family are in our thoughts and prayers. (Just wanted to send a note after reading your article In "Parents.") A colleague's (and dear friend's) son, Devin, is currently at Sloan-Kettering. All of us in Ohio are sending good wishes your way for Liam and Devin.
Lisa Stankunas
reaganstankunas@hotmail.com
Still reading....love all the pics of Liam...he is darling. Keep fighting. Love, Cara
Gretchen,
TeamSam.com is a website for a little boy that is my grandaughter's second grade class here in San Diego. He had stage four three years ago and has relapsed twice. Now on a new clinical trial chemo cocktail and his parents head up a foundation called magic water project. Please check out his website. My daughter wanted me to pass this on to you. I know that you are interested in networking with all parents who's children suffer from this horrible evil neuroblastoma. Thought you might be interested.
affectionately, Elizabeth Reeves (from Dr. Rabinowitz office)
I saw your Liam's story in Parents Magazine. It touched me very deeply, as I too have a Liam and he too has cancer. Or hopefully, HAD cancer... My Liam is 6. He was diagnosed with Myelodyplastic Syndrome (MDS) in October 2005. He had a bone marrow transplant Feb 28, 2006 at St Jude Children's Research Hospital. Thanks for your efforts to raise awareness to childhood cancers!
Liam's mom... Gina
www.caringbridge.org/visit/liamreinier
I read your story in Parents Magazine Feb 2008.
I just want to say my prayers are with you.
May God be with you Liam through this stage of your live. May He guide you, encourage you and give you the strenght that you need to keep on going. You are a miracle, the best of all.
Form Florida all our love and prayers.
We're sending our well wishes and plenty of Valentine's you way, Liam. You're all in our prayers each and every day.
Stay strong!
Tracy, Robert, Caroline & Kate Hornby
I hope you are doing well. My office sent a box of valentine's for Liam and everyone is wondering how many he got.
Hi Gretchen,
Mom told me about Liam. I'm so sorry that you guys are dealing with this. Liam is so brave! Just want you to know Liam (and your whole family!) are on my prayer list.
love,
Bonnie Soper
Gretchen,
I am a St.Francis Classmate (1983)
I am working with your Father, with in an hour of meeting, we found we both went to SFA Briefly at the same time. Which Brings me to your site for Liam and the foe Neuroblastoma. YOur family has stayed in my thoughts and prayers. I love seeing the pictures of your children's smiles and the strength of Liam, shines thru. YOur daughter Eli is a beautiful and caring little sister. All our hope goes with you all, Sandra Zajacek Levisay
Unlike many of the mothers who have posted on this blog, I am fortunate enough to say that my girls are healthy and cancer free. But it has been a couple of months since I read about Prince Liam in my Parents magazine, and I cannot get him out of my mind. Maybe it's the fact that 1 of my girls is around his age, or maybe it's that darn binky in his mouth that makes him look so much like her, innocent, small, and so sweet. He and your whole family are in my prayers. God bless all of you and everything you are going through.
Thank you for your story in Parent's Magazine. It inspired me to "Google" for an update on Liam and I came across Band of Parents and decided to donate money in honor of Liam (and Toby and others still fighting NB) and in memory of Carter, Alex and others that fought but lost the valiant fight.
As a mom of twin toddlers, I cannot imagine what you and your family must be going through. Thank you for helping me stay focused on what's really important in life - our health and our families.
Wishing Liam lots of success and healing and sending your family prayers, too.
Catherine from California
Hi!
I first saw Liam in Parents Magazine. I found his blog and have been a follower ever since. Your last post moved me to tears. It's not right that a parent has to cause so much pain to their child in order to help him survive. I pray for Liam and all the childern with this horrible disease. I espeically pray for you, the parents. You guys are my heros. I've learned not to take my child's health for granted.
Thank you so much for sharing your joys and your pain.
Kathleen Craig
Hello Witt Family! I am so happy to find that you are all doing so well. I'm sorry to hear that it was a rough week of treatment for Liam - why must the thing that can help so much also hurt so much? Keep fighting Liam!!
BIG HUGS AND HAPPY SPRING!!
Em Galbraith
I just want to send my love and best to all of you. Gretchen, please let me know if there is anything I can do from Rhode Island. You are constantly in my prayers, and those of my prayer group.
Fondly,
Bonnie
bsoper1@cox.net
Liam and Family - Good luck on this next step on your journey to recovery! And a Go Diego Go Birthday party sounds awesome :) Sending lots of love, and have a happy happy spring :)
I must say, from the first word until the last word, I was uncontrollably crying. I am so sorry to hear what you and Liam have to go through. I couldn't imagine having my son go through that. It still gets me teary eyed just thinking about it. Liam seems like such a brave boy. I don't know anything about that particular cancer, but I hope all goes well and Liam won't have to go through this anymore. I wish you and Liam the best of luck and please keep us updated.
Keep up the good fight, little prince. We're all pulling for you!
Love,
Tracy, Robert, Caroline & Kate Hornby
Hi Liam and Family - just stopping in to say hi and wish you luck on the outcome of your scans!! -Em Galbraith
Gretchen, it's Emily Phaup (Kiser) from our former lives at CRT. Wendy Martin forwarded me Liam's blog. I just can't put into words all the thoughts running through my mind when I heard about Liam. But I am so proud of him and your family and how you're just fighting demons and trying to balance this crazy and scary reality of your daily grind. I stay at home with my two kids Grace (4) and Turner (2) and have my own small business. I would love to reconnect and might have a unique online fundraiser through my current business (www.mysilpada.com/emily.phaup). It may not raise much, but every little penny helps! Please reconnect with me at tripem3@msn.com or 804-288-4247. I hope to hear from you soon! Emily
I read your story in Parents magazine. I find myself, frequently, going back to re-read the article. It makes me cry everytime. I cannot image what Liam and your family are going through. Please know that I am praying for you and I know that God will hear our prayers. Much love, support and many prayers...Jaimee Scalia
Hello Liam!
It's Baby Matthew's mommy, Susie.
I stumbled upon your site and Im so happy to hear you are doing so well. We miss seeing your handsome face! Wish mommy and daddy well. Love from the Welling family.
Our family sends its prayers for Liam and all of the other families who are facing such a hard road. We don't always understand what God's plan is. Maybe He is using Liam's experiences to help, not only him, but other children fight this disease. I can't imagine how we would feel if our little boy were to fall ill to such a terrible disease. Please know that there are so many out here thinking of your family and praying for successful treatments.
Happy Birthday, Liam!!! Got a message from your Michigan Grandma that today is your birthday - so happy birthday from the Goolsbys in Iowa!!
Love, Scott & Cindy Goolsby
Happy Birthday to Liam!!!!!!!!!!! And to Ella, Gretchen and Larry, who have the joy of this birthday to share.
With love and gratitude for this over-the-top, coolest, spectacular, wonderful birthday,
Marge and David (and the gang)
Happy Birthday Liam! ;)
Gretchen,
Please know that Liam and your family are in my thoughts and prayers - and have been since I learned of this last year. Having left the American Horticultural Society, where our paths crossed, I haven't had professional reason to be in touch and have been reluctant to bother you as you deal with such a difficult struggle.
Please know, however, that you continue to be in my thoughts. I am so grateful to see Liam's happy birthday celebration; even as I grieve when I read of the many losses you have endured since being thrust into this frightening confraternity of parents and children.
My seven year-old son and partner join me in sending love and healing.
Fondly,
Barry Goodinson
Happy Birthday Liam! *Christie & James
- Mission Guild Studio
Dearest Liam,
You Mom and I went to college together and had a fabulous time. We have so many fun stories to tell you! You are so lucky that you have such a great Mom and Dad. I saw your pictures of your birthday party and saw that you had a great time. Happy 4th Birthday! I hope we get to meet each other sometime soon! Much love, Jennifer Guyer-Stenner from Chapel Hill
Dear Prince Liam,
I know that you do not know me but I've been reading about you and you are an inspiration to me. My name is Kelly Davilla and I live in Portland, Oregon. I am 28 years old and I am the oldest of 10 children. In my life I've been so lucky as none of my family members have battled any form of cancer. I work for Nike and at the end of next month I will participate in the Livestrong Challenge and this will be the first 5K I've ever run, I've decided to dedicate my run to you.
I've already begun training for my run and I'm going to start posting some pictures and notes to you on my blog, please know that you are in my heart and in my thoughts. Stay strong Prince Liam!!
http://rudabegga.blogspot.com/
I just wanted to thank you for you comment really did help and it just felt great to see that I really am not alone anymore.
-jessica lynn
Liam and your family continue to be in our thoughts and prayers. We have our fingers crossed for you with the test results. He's such a brave little guy - he's a true inspiration. Keep fighting, Prince Liam.
All the best,
Tracy, Robert, Caroline & Kate Hornby
Lebanon, NJ
I am sending you extra prayers as you have your tests. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB
I'm so proud of Liam for enduring such a long MRI session yesterday. My thoughts and prayers are with you.
Liam -
I haven't posted in a while, but we never stop thinking of you, rooting for you and praying for you. With another surgery coming up, we wanted you to know again how much we admire your bravery. Tell 'em how it is, Liam. You are our hero!
Emily Fowler and sons Cam & Tate
Cornelius, NC
Meredith '98
Liam and your family are in our thoughts and prayers.
Lisa Stankunas
Sending the most incredible prayers and thoughts in your direction Liam! You are such a cool little dude, and having seen you a month or two back in Whole Foods with your sis and nanny, the high five I got from you couldn't have better conveyed the incredible fight and spirit you have. Sending prayers and courage your way - the entire Witt family, you are an incredible crew.
gretchen and larry,
we think of liam every day and will double up on friday. he is such a wonderful, sweet boy. i felt like i had won the lottery when he recognized me as "toby's mommy" last week! sending you all our love, strength and hope.
xox,
mooki
Gretchen,
Over here in London we are thinking of you, and are sending strength and prayers and positive thoughts over to you all for tomorrow.
We'll be very eager to hear how it all goes.
-Amy, James and Ciaran
Good luck today. My thoughts and prayers are with you all.
Sheil
Larry & Gretchen, just wanted to let you know that I am praying that Liam has a successful surgery today and a speedy recovery. I have prayed every day for God to continue to give you the strength you need to help Liam.
You are amazing people and Liam is blessed to have you as parents. And, as you know, you are blessed to have him.
Much love to you, Liam, and Ellie,
Julie Sussman
Liam,
We are all thinking and praying for you...keep up a good fight!
Love,
The Dixons
Gretchen and Larry - woke this morning to your message and just want to scream for you. The world is behind you - ready to help you when you need it. No words will help but we are praying like crazy to ease the hurt you must be feeling.
All our love -
Renee and Patrick
Gretchen and Larry, Please know Liam is in my thoughts and prayers every day and even more so after your news from yesterday's surgery.
Prince Liam, your strength is unimaginable. All the super heros put together - Batman, Superman, Hulk, Fantastic Four, Aquaman, Spiderman, Power Rangers, Ninja Turtles, Flash Gordon and on and on - are no match for you!! You are 'da man :)
Much love and tons of blessings!
The Healys (Peggy, Tim, Sean and Maeve)
Dear WItt family,
My thoughts and prayers are with you and your family. I pray Liam's recovery from surgery is speedy and painless. May his future treatment be successful with little to no side effects.
Sending prayers your way.
Andrea
Hi Larry,
I am thinking of you, and hope Liam conquers this next hurdle. He is a beautiful little boy - and a great fighter.
Cheryl Chandler Gilder
Orlando, FL
Its so unbelievably unfair that Liam has to endure this setback. I hope that he's recovering from surgery well, my thoughts are with you all. The Witts are anxious for updates and are praying for Liam's strength through this next round of treatment. Love you all!
Amber Pedersen (Witt)
Dearest Prince Liam the Brave,
I'm hoping you like your new POOH room and are healing from your surgery. You and your parents are very brave. Gretchen you are an incredible person and Mom. Do you think there is anything I can check out for you that might be able to be done at Duke Medical Center? Is Liam in any clinical trials? Jennifer
I am so sorry to hear about Liam. I had an 11 1/2 hour surgery 3 weeks ago and his bravery was an inspiration to me. And I am so, so very sorry he and your family have to go through this again. I hope you don't think of this as a relapse, but as a challenge, and as my mom always says she learned from me that challenges are not obstacles, but just details to be worked out. And in your case, a game plan with your top team of doctors, your fierce determination, and your prince's endless spirit and courage. You will be in my thoughts, prayers, and daily will to like Liam, be resiliant and perservere.
Hi Liam and family, you guys are all in our prayers!
I read your last post and had a quick suggestion for helping make Liam's transition into school with hair loss easier.
When I was little kid, I saw this charlie brown special, and it really helped me understand my friend's illness, I was in 1st grade. This is a link to the video if you are interested:
http://www.amazon.com/Peanuts-Why-Charlie-Brown/dp/6303484115
Hope that helps in its small way!
:)
Hang in there, Prince Liam. We're pulling for you!!!
Tracy, Robert, Caroline & Kate Hornby
Lebanon, NJ
Larry & family
our prayers are with you and most of all well wishes for Liam.
your friends in Colorado
Larry, Gretchen, and Family,
We are sorry to hear about the setback with Liam's condition. Your strength is inspiring. You are all in our thoughts and prayers at all times.
Stokesdale, NC
I received a comment on my blog: handmadehelp. I wrote back, but am a newbee as this, so don't know if it came through.
I, too, am fighting with all I've got to raise funds for cancer research. Wanted to let you know, maybe put it in a chain mail to friends, about the Cancer Bill#HR6791 I'll try to attach a link. It will come through an ovarian cancer message, that's my type, but the fill is for all cancers.
Best of luck and lots of prayers to you all.
http://capwiz.com/ovarian/issues/bills/?bill=11771076&size=full
Larry, I just read your post from last night and I have tears running down my face. I do not know your pains and frustrations first hand, but know that there are so many people out there who have your family, and most importantly, Liam's health, in their daily prayers. And, many of us are willing to do something more than just offer a kind word here and there. I have already passed on the Cookies for Cancer information that Gretchen posted to the student activities and fund raising directors at the high school I teach at. I'm hoping they come through - I'll be following up. There's no reason why just about every area school cannot do something to support Cookies for Cancer and support some bake sales!
All the best,
Tracy Hornby
Lebanon, NJ
Dearest Liam, Ella, Gretchen and Larry. The Wizards of Nantucket beckon your return in September. The Beach fairies send magical grains of sand along with love and wait your return. Teri, Kenan and Tony
Gretchen...
We used to work together on some pr stuff when I was at HOME mag. My heart goes out to you and your family every single day. We pray for Liam. Our 3-year-old son Gavin prays for Liam. We're out in the country, but Tom still works near Wall Street so I sent him up to the hospital again yesterday to donate blood specifically to Liam. He is O negative. Let me know how often Liam might need to bulk up his supply and he will keep going back. If you have info to email about the cookie bakeoff, send to jennyjonesy@yahoo.com. Maybe I can get all of my mom friends to help out.
Take care of yourself and that family of yours.
Jenny
I found your blog by accident and wanted to post a quick comment here. I am a pediatric oncology nurse in Salt Lake City, Utah, so I understand your struggle very well. I know all too well how the diagnosis of cancer is instantly devastating to the entire family. My thoughts and prayers are with you as you continue this brave fight.
(And I hope that today, his ANC was 0.5 and you were able to head home!!)
Found your blog through a message you left on a friends blog. Her daughter was just diagnosed with Stave IV neruoblastoma! Reading through this gives me hope. I will add Liam to my prayers.
GOD IS GOOD!!
i know your feelings. i lost my 14 year old son, my best friend ever, AJ. Childhood cancer. join the fight, spread the word.
Cure Childhood Cancer
and
People Against Childhood Cancer
we have to unite
AJs Dad
AJs Blog
Hi. It's Adina from the hospital. My mom just read your most recent entry aloud and we both started crying. We didn't see Liam for 2 days and was wondering where he was, but we are now glad to hear you guys are back home. Liam knocking on my door, as you mentioned in your entry, giving candy, seeing his magic hair, robot, crane truck, or just his happy smile will be missed. I am hoping to go home by the end of this week. My ANC is going up quickly so I hope to break out of here soon! Hopefully we will see eachother again on a quick check up visit in the clinic. Just from the few times of seeing you with Liam, keeping him so busy with all of the games, toys, and crafts and reading your blog I can tell what a great mother you are. I wish Liam and your whole family all the best.
If you'd like to visit my website it's : www.caringbridge.org/visit/aberkowitz
Hope to hear from you!
-Adina Berkowitz
LIAM! I am so glad that you are finally home :)
I was wondering if you have considered the Morgan Center for Liam's schooling - its on Long Island, so it may be a bit of a commute, but they specialize in preschool aged children going through chemotherapy. The website is themorgancenter.org.
Keep up the good fight! I know you can do it Liam!
Em
Hi. It's Adina from Sloan. I wrote a message before but I don't see it up here, I don't know why it didn't send. Hope this one works... I got home on Thursday after my long 25 day stay. I was missing seeing Liam at the bottom of my door with all his crafts, tricks, and his cute smiley face, but was glad to see I wasn't seeing him because you guys went home. In the comment I wrote before,that is for some reason not here, I was writing after my mom read your -Thursday,August 14(I think) blog- and we started to burst out crying. We can tell what a great mother you are and how you are so patient with Liam and coming up with all these great things like magic hair-lint brushes, robots, giving candy, making silly putty, etc.
It really made me happy just to see Liam's cute smiely face at my door asking his many curious questions to you. Tell him thank you for lighting up my day.
My mom and aunt are going to be doing the Kids walk for Kids cancer walk in May and hopefully I can join them as well.
Hope everything is well.
If you want my site is
www.caringbridge.org/visit/aberkowitz
Love,
Adina and Paula Berkowitz
I hope that Liam's counts are holding up and that he is feeling better after this (hopefully last) round. Just wanted to comment on your birthday wish. My child is also fighting cancer which is why I cannot commit to a bake sale right now. I definitely do not have the resources (financial, time, or emotional) to pull anything extra off right now. Hopefully a few months down the road I can pay that back in spades.Im just guessing a lot of other readers are cancer families and may feel the same way. The smallest tasks can seem so overwhelming. I will however be glad to pass the word on to many people!
Hi Gretchen and Larry, Tonight I was thinking about Prince Liam the Brave and just finished reading your latest update! I wanted you to know that there are sooo many people thinking of you reach and every day and we are keeping you in our prayers. I am so amazed by your strength. Keep fighting!! Martha Moline -The Container Store
We are so incredibly saddened by the news of the loss of your friend, Jessie. It's not fair and just really stinks. Her family should not have lost their loved one and Liam should not have to say good-bye to his friend like this. If nothing else, her loss should be the motivation for others to join the cause to raise funds for research, treatment, and awareness. In her memory, may a great good come out of this dreadful mess. Our prayers go out to all of you!
All the best,
Tracy, Robert, Caroline & Kate Hornby
I wish you lots of luck, I have been watching Liam's progress and pray everyday for him. I'm sorry about your friend Jesse. I know you don't know us, but if you need anything, we can travel.
Our hearts and prayers are with you. We've been visiting your site for sometime and only hope for good news, we are sorry about your friend Jesse, her and her family are in our prayers too.
Just checking in on the little prince to see how he's doing. We hope he's doing well and his body is responding to treatment. Kick some cancer butt, Prince Liam!
Love,
Tracy, Robert, Caroline & Kate Hornby
Hi Gretchen, I just read your comments about Liam's latest MIBG scan results and am SOOOOO happy for you all. You write so well;I was following that story about waiting for Dr. Kushner to email you back with bated breath and I could so relate. The anxiety we go through waiting for these scan results is torture. When I read the happy news, I burst into tears. We continue to pray for good news for your little prince! Love, Colleen, Nina's mom
Its so wonderful that you have all of those brave guys pulling for you Liam! I know that you are the bravest of the bunch, but its awesome to be surrounded by real heroes! I hope that your shots aren't too yucky! I know you'll be back to school in no time!
Love Love Love,
Em
I found your site through the cookie site - - - to which I was guided to by Kylie Dru Berry's page.
Liam's story is amazing and hearing it told from the Mommy point of view is heartbreaking and so very raw. I, myself, have a little boy who is 4 1/2 and I can only imagine myself in your place. I cry without abandon reading your blog and pray so hard for little Liam and your family.
I have so many things I want to say, but the words are just not forming in my head. I just want you to know that you are being prayed for, that you are being thought of and that you are loved...
I hope this painful journey ends for Liam very soon - and he can be the happy, whole and healthy little boy he was born to be!
Kids cancer sucks and we will find a cure!
Dear Liam,
Our daugther Nehir has also been diagnosed with Neuroblastoma a month ago. We appreciate your braveness and encouraged by what we read in your blog. We hope that you will soon recover fully from this horrible illness. Best wishes,
Nehir, Zeynep & Mahmut Bayazit
Texas Children's Hospital
Dear Liam, Gretchen, Larry and Ella:
My heart goes out to you, and you are in my thoughts. I had cancer and it was almost unbearable as an adult. The thought of you dealing with it now is, well, I haven't the words other than to say I am thinking of you.
There is a beautiful poem by, I think, Nikki Giovanni where she says that having a child means knowing that your heart will forevermore live outside your body. It captures the fragility and the intense love of a parent so well.
Your hearts are with Liam. So are ours. Be well.
Sincerely,
Helen
helen@10yearscancerfree.com
Thank you so much for posting again, it was great to read about your adventures and I am so happy Prince Liam and his adorable sister are doing good. Just be - you know, I have 2 girls now and it is very good to be reminded to just be, I will certainly keep it in mind and try to just be and not be too caught up in whatever our daily lives present us with.
Greetings from Germany, Micha & family
Hello to Liam and his family!
(PS I LOVE COOL NAMES LIKE Liam)
I want to tell you that you are in my thoughts and prayers each and everyday. Childhood cancer is something that NOBODY should have to go through, not at all. Liam is a strong boy for facing everything that he has faced and so are you for standing behind him both physically and emotionally.
I know that I can not change the fact that a child has cancer, but I learned that I sure can change their frowns to smiles by being a friend, a confidant, someone to laugh with (or at :)
and someone to listen. I started an organization called Bravery Buddies so go ahead and check it out. Liam, you keep fighting and stay strong!
If you would like Liam to be featured on Bravery Buddies, or know any other child that would like to be featured on the website, please let me know by emailing me at WCG1985@aol.com
Thanks!
Whitney Glassberg
www.braverybuddies.com
Hi Gretchen,
I was checking in to see how you were all doing. My thoughts are with you all. Please let me know if I can ever be of any help - baby sitting, cookie provider, kitchen tour for Liam... You are so strong and will get through this.
With much love,
Celia
Keep in your hearts faith in God, for God's love and compassion will see Liam and you through.
God Bless all of you.
Dear Prince Liam the Brave,
HAPPY BIRTHDAY!!!!!!
I found you on the internet in December of 2008 looking for Liam's Midnight Cocktail recipe that was in December's Bon Appetit...I did find that, but I also found your link.
I have a son named Liam Vincent DeStefano and his birthday is May 30 - he will be 13 years old. Like your Mom, my name is Gretchen. I was sucked into your story immediately and pray for your good health everyday.
I look forward to the updates your Mommy posts and always celebrate your victories and share with my friends.
Happy Happy Happy Birthday Liam, many many warm hugs coming your way from Hurst, TX. truly, another Liam's Mom - Gretchen!
God bless you as you take care of your sweet baby. I saw your eyes on a recent DFW airing of a Cookies4CancerKids event and I realized that you are a Warrior Mom. My son has autism and I thought I knew what it meant to fight and fear for my child, but I was wrong. Every time I think of you I say a prayer for you. Randie Kay Harrings
I have been following your blog for awhile now and have fallen in love with Liam through your writing. I will be sending lots of love and prayers your way. I used to volunteer at MSKC- please let me know if you ever want some company for Liam. I can bring balloons and books!
Love,
Kim Kow
kimberlykow@gmail.com
Hi Gretchen, Liam, & family. I know you are all so strong and will get through this rough bump in the road. I know it is difficullt, and it does seem forever to go on, but it will end. And then we can all look back on this and say "wow I remember that," like it was a little problem that hardly even matters any more. I know everything will be fine. Liam is an amazing kid, and you are amazing parents. You are always in my thoughts. I hope and believe the best for you will come.
Love, Adina
Hello Gretchen,
You may not remember me, but we were introduced through Rima years ago when I did the PR for Williams-Sonoma. Alexia Bregman, here in Denver, told me about Liam and then we discovered that you and I knew each other.
Liam and Ella are both beautiful children and I am sending lots of hugs and good thoughts to you and your darling family.
I know Alexia is running the NY marathon for Liam, so I will be sure to support her in that, but I would be happy to help with a bake sale or anything else.
Much love and support,
Meredith Lischer Bradford
My heart is sinking and I am so angry for you and for Liam. Please know that you have been and continue to be in our prayers. We firmly believe that Liam will beat this horrible beast and will serve as continued source of inspiration for all other families whose lives have been turned upside down by the nightmare know as cancer. Like his parents, he's a true warrior who will not take no or back down in the face of this wretched beast.
Let the bake sales continue and the awareness spread!!!!
With much love,
Tracy, Robert, Caroline, Kate and Jack Hornby
Lebanon, NJ
I can relate to your great description of feeling like you have the life sucked out of you then the poignant emotion as you witness the wonderment through your child's enjoyment of something simple like the afternoon sunlight through the window. We think of Prince Liam and your family daily and hope for a successful treatment.
Bounded by Hope and Love,
The Tran Family (Chinh)
Just letting you know that as you go into battle this month, if there's anything we can do to help, especially back in NJ (like with the upkeep of your NJ home, gardening, mowing, etc), please do not hesitate to ask. Liam and your family continue to be in our prayers. We think of you all the time and pray for a healthy outcome after this round of treatment.
Love,
Tracy, Robert, Caroline, Kate & Jack Hornby
Lebanon, NJ
Relapsed NB *is* vanquished and so it will be with Liam (but you already know that). Get ready for future springs and summers when you will be visiting college campuses with your son, while your daughter flirts with his college friends during holidays. Don't forget to put some cash aside for when he comes to you asking about that special trip after high school graduation with his friends. You'll warn him about the dangers of drugs and he'll laugh, heartily, saying he's sampled a lot of them in his childhood treatments and has no desire for any more! Just ask Erik (Ludwinski). NB will soon stand for "note", and nothing else.
You all are truly amazing - your whole family. With love and hope.
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