In bed next to Liam who is sleeping. He has his hand resting over my heart right now and is curled up next to me. Good news to share...His white blood cells went from .1 yesterday to .4 this a.m. That's huge and we needed a boost since yesterday was a particularly no good, very bad day.
He has been running a fever for 2 days. Ugh. He's on 3 super powerful antibiotics to try and fight off whatever is causing them. At this point we don't know what the cause is. And I've had two hospital people in the room this a.m. To tell me they're working on a donut to fit Liam's tiny little butt so that he can sit on something comfy. He needs to sit up so that he takes deep breaths and uses all of his lungs, but his little bottom is raw from diarrhea from chemo and sitting isn't a pleasant thought to him.
One of the things that is so amazing to me is how you have to be a vigilant keeper of your child's care, even at a world-renowned institution like MSKCC. We constantly are pushing to make sure he has gotten his medications (two days ago he missed two doses of an important medicine to help fight off painful sores in his mouth and GI tract) , the action points that are discussed during the daily morning consultation are acted upon, and that we as his parents and main cheerleaders are doing everything we possibly can to make him better.
He woke up at 4:30 am and wanted juice, a good sign. And before he went to sleep last night he did two very special things. 1. He told me he's a happy dinosaur and 2. Announced that he wanted to go on an airplane to take a trip with Mommy, Daddy and Ella.
Have to run...Liam is asking me to rub his feet.
XO
G
